Our Hope is now 15 months old! Many of you know her story, but for those who do not, here is a quick summary (you can read past posts for more in-depth information). She was born prematurely with Spina Bifida and hydrocephalus, and soon after developed a feeding intolerance and swallowing dysfunction. Her swallowing and feeding problems currently require her to have a trach, a feeding tube and oxygen. She is unable to take anything by mouth and, of course, she can’t audibly speak. She constantly aspirates her own secretions and, consequently, suffers from chronic lung infections and has to be suctioned out A LOT. She underwent 6 surgeries and many more testing procedures just in her first 7 months alone. Our sweet girl has come a long way (she rolled over on her own just this past weekend!), but she has a long way to go.
The cause of Hope’s airway, swallowing and feeding issues is undetermined, and we’ve exhausted our resources locally. Our doctors here have no answers and are mostly just treating symptoms and side-effects at this point. However, we now have an awesome opportunity! The internationally-renowned Pediatric Aerodigestive team at Cincinnati Children’s Hospital has accepted her case and already devised a collaborative plan of testing that will hopefully lead to some answers.
We so long to hear our little girl’s joyful laugh, but there are 600 miles between here and possible answers. Please consider donating to help Hope get the care she needs and deserves. We would be very grateful. Any additional funds will go towards future visits/expenses and an accessible van.
Feel free to join our Facebook group for updated information – Help for Hope.
Thank you and may the Lord bless you!
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Rejoice in hope, be patient in tribulation, be constant in prayer. ~ Romans 12:12